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Who is Katie Beckett?

Every time we meet with parent groups, we are asked a wide variety of questions. So, we’ve decided to add a feature to our newsletter to try to answer some of these questions. If you have a question we can answer for you and other families too, please call us at (800) 393-7290.

We have heard from families that experiences applying for Katie Beckett differ from region to region.  Although that shouldn’t be the case, it seems to happen.  So, to discuss specific circumstances about your family, contact your local Health and Welfare office and ask for the Katie Beckett coordinator.  If you feel like your questions still aren’t answered, give us a call and we’ll be happy to try to help!

In a nutshell, Katie Beckett allows families who don’t qualify for State funded medical assistance (what we call Medicaid) because they make too much money, to be considered for help if they have a minor child with a developmental disability. There are a couple of key points to being

eligible: a diagnosis, impact upon at least three life areas (example: mobility, self-care, communication), and the need for significant supports—or an ICFMR level of care. This concept is important to know! ICFMR level of care means that a child would qualify to be in an Intermediate Care Facility for the Mentally Retarded. This is like a group home or institution. This DOES NOT mean that your child must live in a facility or group home, it just means he or she meets that level of need.

Katie Beckett is a program based on an actual person and what her family went through. The federal government designed this program as an option a state can choose to offer. Not all states have this program! Idaho is lucky to have it. If eligible for this program, a child receives a Medicaid card that provides medical, dental, pharmacy, and some other services like Personal Care Services or in-home supports. There are a couple of things you might want to know about this program so you can ask how it might impact your family.

First, whenever you are part of a state funded program, you are going to be asked about your income and resources. But, in Katie Beckett—it’s not the parents’ income that is asked about. It is the child’s income and resources that are an issue. If your child has a bank account, stocks, bonds—whatever—you will have to share that information as it could affect your child’s eligibility. Another tidbit: as your child nears 18, he or she will need to be assessed for what kinds of adult programs (called waivers) they will be eligible for.  Katie Beckett is a program for children—it isn’t available to adults. Last tip: just because you have a Medicaid card, it doesn't mean you can find a provider. That can be tough, especially in our small towns.

We would love to hear from you and share families’ experiences with Katie Beckett! Give us a call:

(800) 393-7290

     

Did you know?  Legislative Updates 2007

October in Idaho is now Disability History Month. Congratulations to everyone it took make this happen! The goal of Disability History Month is to encourage both public and private schools to provide instruction on disability history; as well as to increase awareness and understanding about people with disabilities and their right to live the lives they choose.

Last year we told you about an idea to offer a Family Directed Service System, not unlike the Self Determination Waiver Option which is the adult version. The 2007 Legislative session resulted in a joint

effort to develop this type of service option for families who have a minor child with a disability who qualifies for support services (see above as an example). A work group of stakeholders will come together over the next  several  months to develop this option. We’ll keep you posted!

Voting by Mail is something you may or may not have heard about this session. In case it comes back again next year, you should know that although some people think it increases accessibility to vote, the

     
Events & Activities!

visit them online at www.svasp.org!

Special Needs Recreation in and around Coeur d’Alene:
Did you know about this program in Kootenai County? Angie Goucher can answer your questions at (208) 769-2317.

Rafting/Climbing/Canoeing in Utah:
SPLORE is an organization that creates adventures for people with disabilities. Check out this great opportunity. Call (801) 484-4128 for more info or visit them online at www.splore.org.

If you know of more events or summer activities, let us know!

 

Back Next

Training on Understanding Communication with Young Children:

Saturday June 9th—9 am-4pm in Idaho Falls. For more info call Shelly at our FRC in Region 7 at (208) 528-5905.

Treasure Valley Resource Fair:
June 23rd—9 am-12pm at the Adventure Island Playground in Meridian.  For more info call (208) 887-3531.

Race Ya to the Playground:
Saturday July14th—8 am at Tautphaus Park, Idaho’s 2nd Equal Access

Playground in Idaho Falls. For more info call (208) 542-0875.
Summer Activities in Boise:
Register for adapted summer activities with AdVenture. Call (208) 384-4216 ext. 28 and ask for Joe!

Adaptive Activities in Pocatello:
CW HOG offers a wide range of programs including rafting, day camps and kids activities. Call (208) 282-3912 for details.

Adaptive Programs in Ketchum:
Sun Valley Adaptive Sports has a ton of activities! Call them at (208) 726-9298 or